US Gaucher Conference October 1999


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Over 130 people with Gauchers disease, their relatives, doctors and representatives from pharmaceutical companies attended a two and a half day Conference held in Arlington, Virginia on 1-3 October 1999. Ten years ago, the first trial of enzyme replacement therapy took place at the National Institutes of Health (NIH) only a few miles away. Much has happened since then and seven of the most well known US doctors in the field spoke about their past experiences, what is happening now and what the future holds.


Medical Management of Gaucher Disease: Ask the Experts
Dr John Barranger, Dr Roscoe Brady, Dr Gregory Grabowski, Dr Pram Mistry, Dr Gregory Pastores and Dr Raphael Schiffmann made up the Panel of Experts at the US Gaucher Conference in Arlington, Virginia, USA on 1 October 1999. (February 2000).

Understanding Gaucher Bones
Dr Henry Mankin spoke about the bone complications of Gaucher disease at two talks: one at the Royal Free Hospital, London on 9 November 1999 and the other at the US Gaucher Conference in Arlington, Virginia on 3 October 1999. Dr Mankin is Chief of the Gaucher Disease and Bone Cancer Program at Massachusetts General Hospital in Boston, USA and has served as Chief of Orthopedic Surgery and Professor of Orthopedics in Harvard Medical School. This is a summary of both talks. (February 2000).

Fosamax Trial: Update
By Dr Gregory Grabowski at the US Gaucher Conference in Arlington Virginia on 1-3 October 1999. (February 2000).

The History of Gaucher Disease
By Dr Roscoe Brady at the US Gaucher Conference in Arlington Virginia on 1-3 October 1999. (February 2000).

Gene Therapy: Update
By Dr John Barranger at the US Gaucher Conference in Arlington Virginia on 1-3 October 1999. (February 2000).


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Source: Gaucher's News February 2000. © Copyright Gauchers Association 2000