Parental Leave and Family Fund Trust

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Parents of disabled children are to benefit from new measures introduced by the UK Department of Trade and Industry to come into effect later this year.

Their parental leave entitlementin the UK is to be increased from 13 to 18 weeks. It can be taken until their child's 18th birthday. This leave is available to parents of children who receive Disability Living Allowance.

When a child is disabled, parents acquire many additional roles. They are likely to be providing transport, additional support and active participation in assessments, therapy and reviews. This will give parents of children with a disability greater flexibility to strike the balance between working and caring for their child's additional needs.

Who can take Parental Leave?

Parents of children who were under five on or after 15 December 1999 and who have completed one year's qualifying service with their employer by the time they want to take the leave, will be eligible.

How long does Parental Leave Last?

The leave is unpaid and can be taken in short or long blocks depending on what has been agreed with the employer.

Where can I find out more ?

A copy of the Parental Leave Regulations can be found on the DTI Website at

Family Fund Trust

This trust has been set up to ease the stress on families who care for severely disabled children under 16, by providing grants and information related to the care of the child. The Trust is funded by the Government.

On making an application to the trust one of their officials will contact the family to discuss the application and make an appointment to visit the family with the child in the home. All officials have experience of working with disabled children and their families. All information will be treated in strict confidence and not passed on to anyone without permission.

Some examples of the ways in which the Trust may help are provision of:

The Trust may also be able to help in other ways as long as they are related to the care of the child.

I am already aware of one family who has a child with neuronopathic Gaucher disease who has successfully received money through the Trust.

Contact the Trust for more information or an application form at:

The Information Office, Family Fund Trust, PO Box 50, York YO1 9ZX.

Tel: 01904 621 115. Fax: 01904 652 625.

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Source: Gauchers News September 2001.
© Copyright Gauchers Association 2001