Gaucher Disease: Other Sources of Information


Gaucher's News Contents


Genetic Diseases E Mail Discussion List
You exchange E mails with about 200 other sufferers (including a few physicians) interested in Gaucher Disease. The list covers other genetic conditions but the majority of members are Gaucher patients.

Physicians with experience of Gaucher disease

Associations Around The World
A list of addresses and phone numbers of Associations worldwide.

Comprehensive Book on Gaucher Disease

MedLine PubMed Database of Medical Articles
You can search this extensive database without charge or the need to register at the National Library of Medicine of the USA. A summary of many articles is available on the database. After clicking the link above, make sure that the box Search shows PubMed and type in Gaucher Disease in the box which has the word for in front of it. Then click Go.

National Institute of Health, extensive references for Gaucher Disease Type 1 in academic periodicals
Although this looks like a comprehensive list, some important articles appear to be missing. The updating is done every few months so it is not as up to date as Medline (above).

National Institute of Health, extensive references for Gaucher Disease Type 2 in academic periodicals

National Institute of Health, extensive references for Gaucher Disease Type 3 in academic periodicals

Federal and Private Roles in the Development and Provision of Alglucerase Therapy for Gaucher Disease
A report by the US Government Office of Technology Assessment (OTA) published in October 1992. This is held as an acrobat file and is 41 pages long (including 10 pages of references).

European Gaucher Alliance With links to the aims in 18 langauages.

Children's Gaucher Research Fund (Type 2 and 3)

Addenbrooke's Hospital, UK Gaucher Service

Genetic Interest Group (GIG), UK

UK Self Help and Patient Groups Web Links

National Association of Rare Disorders, USA

International Gaucher Registry
Mainly of interest to physicians treating patients with Gaucher Disease. The Registry is financed and run by Genzyme Corporation.


Information in Spanish, French, Italian, Swedish, Dutch, German, Japan, Russian and Hebrew:

Mexico New ¡ Pide un deseo!  La enfermedad de Gaucher

ЗАБОЛЕВАНИЕ ГОШЕ

New La Maladie de Gaucher

New Gauchers sjukdom


Gaucher's News Contents

Last updated 2 October 2004.
© Copyright Gauchers Association Ltd 2003