Virginia Bottomley Praises Efforts of Association to Support Families

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Statement by the Secretary of State for Health
Jeremy Manuel read a statement from the Secretary of State for Health, the Rt Hon Virginia Bottomley MP at the start of the 1994 Conference of the Gauchers Association: 'I am sorry that I am unable to be with you at your Conference today. I am sure that, like me, you will be excited by the prospects for future success in research into genetic disorders. Already there have been marvellous advances in treatment regimes which would have been unthinkable only a decade ago. This is a testament to the efforts of those working at the cutting edge of medical research across many continents and also to the inter-national co-operation that is vital if yet further improvements are to be made.

'I am particularly pleased about the Association's efforts to support sufferers and their families. I am sure that, as with other rare genetic disorders, it is often because these conditions are quite so rare that affected families want to find out all they possibly can about their condition. Their need for support from sympathetic people who have gone through the same experiences which they themselves have, is therefore all the more acute.'

A letter of support and encouragement from David Blunkett MP, the then shadow health spokesman, was also read out: 'I would wish you a very successful day and commend my support for your work in providing awareness and information for those who are affected by Gauchers disease'.

Source: Gauchers News February 1995
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